Sometimes I get caught up in my life. It’s a fast-paced life: career, daycare, bath
and bedtimes, stolen moments with my husband, rare conversations with friends. Full days or weeks can pass without catching
a breath. But this weekend, I had two moments
that caused me to slow down, look around, and truly appreciate my life, and
especially my daughter.
Saturday I had coffee with a woman who found this blog by searching
for MTHFR on the internet. Like me, she has
been diagnosed with compound heterozygous MTHFR. Also like me, she has gone through a fresh
IVF, and a frozen transfer, and she lost a baby at eight weeks. She also goes to the same RE as me, and has
had the same frustrations. The only
difference is she has PCOS and she’s 10 years younger. But after you’ve gone through multiple years
of infertility, multiple cycles of treatments, losses, etc., it doesn’t matter
how old you are – it just plain sucks.
And hurts! She found my blog
through searching for her diagnosis, and then discovered that I lived in
Houston, and she suspected and later confirmed that we even go to the same
doctor. It’s amazing, really, to think
that she was able to find me through the internet, and that we have so much in
common.
We met for a couple hours on Saturday, and she talked about
her history and her plan for the future.
She’s exploring the world of reproductive immunology, which I was
surprised to hear was recommended by our doctor, considering the struggles I
had with him in this regard. The
pathology on her miscarriage showed a chromosomally normal baby, which is why
he recommended immunology testing, and we talked about all this. I was struck by how we have very different
personal histories, and yet we are in many respects the same person. I sat across the table, and saw all the
frustration, the confusion, and the pain that comes with battling infertility and loss. I wish I could take this pain away from her,
and that I could guarantee her a baby. I
wish I could tell her that if she keeps going, keeps getting tested and
spending money and going through treatments, that one day she would get her
baby. But I can’t. That’s the worst part of infertility. We battle this, every day, and there is no
guarantee.
Last night I also received heartbreaking news about my best
friend IRL. I’ve talked about her on my
blog before, she started TTC after I did, and when she finally met with a
doctor, she used me as an IF mentor. Due
to her age (she’s now 42) she quickly went to IVF, and we started the IVF
process at the same time, the two of us fantasizing about raising our IVF
babies together. Since then she has had 2
fresh IVF cycles, which resulted into two early miscarriages. After the 2nd IVF, her husband was
diagnosed with testicular cancer, so this derailed their TTC plans for
awhile. But he went through chemo (after
freezing a bunch of sperm prior to treatment), and he is now declared
cancer-free, so they started their 3rd IVF cycle, using some of his
frozen sperm. This time, however, they
did PGS. They got 16 eggs, 12 were mature,
and 6 fertilized. All 6 were tested with PGS, and
none of the embryos were considered normal enough for transfer. This is the official end of their attempts at
having a baby made with her genetic material.
They are exploring their options, and will meet with the doctor in June
to discuss donor eggs, but my heart goes out to her. I know this is a huge loss, and I wish I
could take away her pain.
I am so very lucky.
Every day, I go online, fingers crossed, and hope that the women whose
blogs I follow get that elusive BFP, but more importantly bring home their
baby. I’ve been online for awhile now,
so I’ve seen many of us start to parent, but there are so many who are still
trying for that first baby, even some that started their infertility journeys
prior to me. I wish that it wasn’t so
hard – I don’t understand why some people get their babies and some don’t. The pain from women online is so hard to see,
but sitting across the table from it, and then hearing about it from my best
friend, I feel so helpless, like there’s nothing I can do. (…well actually there is one thing – I could
donate my embryos to my friend, but it may be a bit early for that, I can’t
even wrap my head around this one…) All
I can really do now is be there for my best friend, and for my new friend, and
be grateful for my daughter. Last night,
after I gave her the last bottle of the day, and rocked and sang to her, I
squeezed her a little tighter than normal, and gave her a couple extra kisses. I can’t put into words how grateful I am to
have her in my life.
Oh Alex, this post breaks my heart. I don't understand why it just doesn't work for some people. It's just not fair. Praying for your friends and hope that one way or another, they get to be moms.
ReplyDeleteWe are indeed part of the lucky crowd my friend. Lots of love and luck to your friends and all our other IF sisters out there!
ReplyDeleteI spent my Saturday with a blogger I met who ended up going to the same RE as me too, small world, huh? I am so glad to say that you are one of the lucky ones, and I only wish everyone could be as lucky. I was going through old TTC emails today with another blogger and I could just feel the emotion through our words, the stress, the heartache. Dealing with the pain of IF is just awful. :( Squeeze that baby tighter every chance you get!
ReplyDeleteI know how you feel - it's amazing how quickly you connect with a "stranger" who has also struggled with infertility. It's practically instant.
ReplyDeleteOh wow, that is so sad. It's awesome that you are here for people though. You have a very inspiring story!
ReplyDeleteYou are such a thoughtful person Alex. I am so sorry for your friend and I do hope she'll find another way to make a family, she is not out of the game just yet. Sending you big hugs. Fran
ReplyDeleteKeep squeezing that little girl and giving her extra kisses. We are so very, very lucky. And at the same time so aware that it might never have happened for us, as you say, no matter how much effort and money we put into it. So glad to hear that you and Alex are doing so well!
ReplyDeletethank you so much for writing this post. it's a message i needed this week! i am so grateful for A, but, like you described, it easy to get caught up in the rat race, and overly focus on the stress...
ReplyDeleteit's so nice you have someone to talk to in person about infertility, etc. i would love that. if you ever find yourself near philly, let me know ;)
sending prayers for your best friend. xoxo.
How nice that you can be there for someone who is struggling with IF. Sorry to hear about your friend. I hope they will find other options to start their family.
ReplyDeleteWhen things like that happen, it does make us grateful for the blessings right in in front of us. ;)